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Websites

Message Boards

Blogs

newsletters

WEBSITES

 

Alzheimer’s Association

www.alz.org (National Website)

www.alz.org/norcal (Northern California and Northern Nevada Chapter Website)

The website for the Alzheimer’s Association. Includes many online and local resources for the early stage individual and care partners.

 

Dementia Advocacy and Support Network International

www.dasninternational.org

Includes information on advocacy, research, other dementias, and a chat room for people with early stage Alzheimer’s Disease. Includes links to other sites. This resource is run primarily by people with Alzheimer’s disease or a related disorder, many with a younger onset.

 

Dementia Alliance International

www.dementiaallianceinternational.org/

A non-profit group of people with dementia from all around the world that seek to represent, support, and educate others living with the disease. This website has multiple supportive and educational offerings, as well as access to videos

 

Dementia Mentors

www.dementiamentors.org

Website created by people with a dementia diagnosis, for people with a dementia diagnosis. Includes the opportunity to speak with a mentor with dementia, via video chat, videos, virtual social gatherings and a page with cognitive activities.

 

MESSAGE BOARDS

 

www.alzconnected.org

 

Dasninternational.org

 

BLOGS BY INDIVIDUALS WITH EARLY STAGE DEMENTIA

 

Note: information expressed in blogs is as varied as the individuals that share their experience. Not all blog sites will appeal to all individuals.

 

Creating Memories blog:

creatingmemories.blogspot.com

Kris B,. diagnosed with Alzheimer’s disease at the age of 46, writes of her experience in living with her disease and her participation in advocacy.

 

My Journey with Alzheimer’s:

http://www.myjourneywithalzheimers.com

Pam M., diagnosed with Alzheimer’s disease at the age of 61, is an advocate and a fund-raiser. She writes of her passion for raising awareness and making a difference, and life in general.

 

Sharing My Life with Lewy Body Dementia:

parkblog-silverfox.blogspot.com

A 70 year old man, retired from the Navy and diagnosed with LBD in 2008, writes this award winning blog.

 

newsletters

 

Alzheimer’s Association of Northern California and Northern Nevada

Available at 800.272.3900 or www.alz.org/norcal/in_my_community_18401.asp

 

Perspectives: A Newsletter for Individuals with Alzheimer’s or a related disorder. La Jolla, CA: Lisa Snyder.

adrc.ucsd.edu/news.html

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